#SABCS 2012 – Thanks Y’all

It’s over..there’s lots of unpacking (both laundry and learnings) yet to be done, but as I sit in the San Antonio airport I am already looking ahead to some very exciting projects!!

I’m sure there will be lots to come as I review my notes and share my impressions of the conference. Here’s the “first pass” on my first experience at the San Antonio Breast Cancer Symposium.

First, it is overwhelming. With something like 8000 participants, and I can’t even imagine how many posters and abstracts, there is simply no way to take it all in. Funny story, this conference is so “big” that I just happened to be waiting in the wrong place for 20 minutes for my VERY FIRST session! Doh!

That said, the Alamo Breast Cancer Foundation and my fellow scholarship advocates quickly made a huge conference feel quite small. No matter what session I was in, there was always a friendly advocate face to be found!

Speaking of advocates…I am still AWED by the time I spent with some of these AMAZING women! I’m a bit nervous naming names, but I must say that with these advocates doing what they do, we will continue to change the face of this disease. Most of you know who you are…and I love you!!

And as pertains to the changing face of breast cancer, there were some interesting things addressed by the conference. Here are some highlights:

1. Her2+ Disease. In addition to Herceptin, we now have Laptinib and Perjeta, and TDM1 around the corner. While progress never comes quickly enough, we’re making some!

2. TNBC. I don’t think there was anyone at the conference who doesn’t ache for our lack of advances in triple negative disease. One glimmer of hope was the a trial looking at Erlotinib FOLLOWED by doxorubicin the next day. The Erlotinib seems to open up the cells so that the doxorubicin is more effective. After I review my notes, I am sure there were some other relevant trials. Baby steps? Yeah…I’m pissed about it too!!!!!!

3. Mets. I have a personal interest in the mets research, of course. There was a wonderful presentation this morning reviewing the outcomes of last years ABC1 conference in Lisbon. There will be a post about that in the days (maybe weeks) to come! BUT, there’s some good news. Everolimus was approved this year for ER+/Her2- patients, and the aforementioned Perjeta and pending TDM1 will also benefit those of us with mets. That said, if there is ONE thing I heard loud and clear (and I HOPE I’m not the only one), it is this:

WE MUST INVESTIGATE METS FOR ITS OWN SAKE!

More often than not, metastatic patient trials are designed to provide information for primary disease treatment. It’s time for a change!

OK, more about mets, TNBC, SABCS and some AWESOME advocate news to come. Right now it’s time to board a flight and head home!

But not before I thank the INCREDIBLE women of the Alamo Breast Cancer Foundation!!! Thank you, ladies…it was SUCH an honor to be a part of you this week!

Bye, Y’all!

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9 Comments (+add yours?)

  1. BreastCancerSisterhood.com
    Dec 08, 2012 @ 15:23:28

    Loved meeting you and AnneMarie, yesterday. What a great community of women!
    XOXOXO,
    Brenda

    Reply

  2. chemobrainfog
    Dec 08, 2012 @ 18:57:28

    HUGS…. and more HUGS…… I’m unpacked (well, about 80%) BUT I didn’t open the bags with the papers in them….. I think I need to wait for someone to be by my side to keep me “grounded” and doing the time check thing. God… I miss you….

    xoxox

    Reply

  3. Anonymous
    Dec 09, 2012 @ 00:38:52

    I am in awe of you and all that you do. I love you and miss you.

    Reply

  4. Catherine ~ Facing Cancer Together
    Dec 10, 2012 @ 11:20:49

    You’re point is excellent – mets must be researched for it’s own sake. Thanks for bringing us the latest news from the conference. I look forward to the ‘to come’ posts! ~Catherine

    Reply

  5. Susan
    Dec 10, 2012 @ 15:37:03

    I am completely with you on the METS. There is too much repetition of things for primary breast cancer especially trials of tamoxifen and AI’s and as patient advocates we need to get the message out that we need research for MBC.

    Reply

  6. Jody Schoger (@jodyms)
    Dec 10, 2012 @ 16:36:02

    You inspired me.

    I think we should put metastatic breast cancer, triple negative and inflammatory in a group – what a collective chorus that would be.

    I also need to point out that #SABCS is one of a number of breast cancer conferences; so we will never see everything that is happening at one time. Don’t I wish we had that snapshot? We can make that happen.

    Spending time with you was one of the great rewards of the conference.

    Reply

    • Lori
      Dec 16, 2012 @ 14:45:08

      I couldn’t agree more, Jody! There is SO much out there, SO much happening…and I personally garner so much strength for connecting and learning from other advocates!! Now when’s that #BCSM get-together??

      Reply

  7. The Accidental Amazon
    Dec 12, 2012 @ 20:34:25

    Lori, I’m so glad you got to go and to spend time with some of my favorite people. Between all of you, I feel we were wonderfully represented and I look forward to more reports. xoxo

    Reply

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