MBC: Let’s Change The Conversation

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I’ve been dreading this post since I first learned about “Metastatic Breast Cancer Day.” As bad as pink is during the month of October, this is actually worse.

  • It’s worse because it reminds me that we are STILL losing women, and men, to breast cancer at a horrifying rate of nearly 40,000 lives a year.
  • It’s worse because so few people, even people with early-stage breast cancer, actually understand mets.
  • It’s worse because a paltry 3% of all the breast cancer research funds are invested to help the 30% of us who comprise the nearly 100% that die from the disease.
  • And it’s worse because today is my son’s birthday.

I’ve laid low on MBC Awareness Day because he takes this hard enough, and because, in truth, every day is Metastatic Breast Cancer Awareness Day around here. Every day is a day when we think about my meds, my stress level, my exercise, my eating…every day we seek ways to prolong my life.

However, this MBC Awareness Day YOU can help. METAVivor is a wonderful organization focused specifically on research. 100% — yes, 100% — of the funds raised go directly to metastatic-specific research projects. They do not have a staff person and they are run by the AMAZING Dian “CJ” M. Corneliussen-James (@CJMeta) Grants are awarded through a peer-review process that includes consumer advocates. This is the real deal, an organization that walks the walk. It’s small, but mighty. It is the antidote to Pinktober, and you can help it grow.

During the month of October, MBC AWARE is raising funds AND awareness of MBC through a broad social media campaign. It is so easy…click the link above. From there, each action is worth a $1…share on FB, tweet, and more. And do it daily.

While you’re online, if you have a few more minutes, read about METAVivor – you need to know about them!

Take away: if you do 2 things this Pinktober, reach out to someone who has mets to let them know you care and click to support Metavivor. And then feel good about leaving the pink crap at the store.

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15 Comments (+add yours?)

  1. phxross
    Oct 13, 2012 @ 09:55:27

    Lori: You know I love you and I support Metavivor!!! (just made a donation!). Karin

    Reply

  2. Susan Zager
    Oct 13, 2012 @ 10:00:59

    Lori I have been promoting Metavivor and clicking on it everyday. Also donated. Yes one day only devoted is ridiculous. But it’s a start. I love Metavivor’s 30% for 30% campaign.

    Reply

    • Lori
      Oct 14, 2012 @ 14:29:54

      Metavivor & CJ are truly inspiring! We have a long way to go to reach 30-for-30, but we won’t get there if we don’t keep rousing rabble!

      Reply

  3. Kathleen Hoffman, PhD
    Oct 13, 2012 @ 13:20:46

    thank you for writing about this, especially on your son’s birthday! Let’s change the conversation!

    Reply

  4. chemobrainfog
    Oct 13, 2012 @ 18:26:17

    I love you… and you already know… I got your back….. (The picture of the three of us is on my blogpost promoting the METAvivor campaign….) Happy (giving)Birthday…

    xoxoxo

    Reply

  5. Jan Baird Hasak
    Oct 14, 2012 @ 14:57:10

    METAvivor rocks as an organization. We do need to change the conversation, and your post does that service. Keep on with your own awareness campaign, one that is far more effective than pink wares on shelves everywhere. xo

    Reply

    • Lori
      Oct 14, 2012 @ 15:19:21

      I’m pretty sure I will continue to assert my own “awareness” campaign for as long as we need to change the conversation!! Thanks, as always, for your love and support, Jan!

      Reply

  6. Acacia
    Oct 14, 2012 @ 15:02:30

    I understand. My husband talked me out of going to the MBC conference in Chicago yesterday because we deal with it everyday too. We can be here for each other.

    Love, Acacia

    Reply

    • Lori
      Oct 14, 2012 @ 15:18:59

      I’m so sorry you’re facing this, too! It sucks on so many levels. I debated going to Chicago as well, but with SABCS on the horizon and NBCC in May, it’s enough time away from home right now. Hang in there…I’m always here if you need to talk, or scream, or whatever!!

      XOX,
      Lori

      Reply

  7. Beth L. Gainer
    Oct 15, 2012 @ 11:04:13

    Lori, I think metavivor is awesome, and I agree that metastatic disease does not garner the attention it deserves. I went to the Metastatic Breast Cancer Network national conference this weekend and was so glad I did. Thank you for reminding us that people with mets need to be a part of the conversation.

    Reply

  8. Nancy's Point (@NancysPoint)
    Oct 16, 2012 @ 11:51:41

    Hi Lori,
    Just wanted to stop by and say thank you again for sharing so candidly during last evening’s #BCSM chat. You are amazing. And I completely agree with you about METAvivor. I’ve been clicking too. Take care and thanks again!

    Reply

    • Lori
      Oct 16, 2012 @ 18:55:30

      Oh Nancy, thank you so much. Chat went by too fast for me to know what happens, but if I gave you, or anyone, new insights, that’s all I could hope for! XOXO

      Reply

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