I’m With NBCC

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Last month I was in Washington for the annual NBCC Advocacy Summit and Advocacy Day. In an earlier post I mentioned the frustration I was hearing over the NBCC agenda as it relates to those of us with mets. I wanted to share and personally thank Fran Visco’s shift in language to focus not on ending the spread of disease (of course a crucial goal), but on ending deaths from breast cancer. While it may be semantics to some, words matter! Your inclusion of those of us with mets is part and parcel with us having a seat at the table.

Thank you, Fran. I’m with you!

You will find the full piece here: NBCC Editorial

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4 Comments (+add yours?)

  1. Jody Schoger (@jodyms)
    Jun 20, 2012 @ 14:06:26

    Lori,
    We are not done until there is effective treatment for every kind of breast cancer, from indolent to inflammatory. We are not done until NO ONE dies of this disease.

    Thanks for posting,
    Jody

    Reply

  2. Susan
    Jun 20, 2012 @ 14:29:43

    I completely agree with Jody that we are not done until we end all breast cancer. This includes a vaccine to prevent breast cancer, preventing mets, and reversing mets to no evidence of disease permanently.
    Great Post and Comment!
    Thanks!
    Susan

    Reply

  3. chemobrainfog
    Jun 21, 2012 @ 09:23:29

    I’m with you, Lori. Stopping DEATH as one of two objectives is a bold statement and enough of a shift to satisfy me that NBCC has their priorities in order. We are barely out off the starting blocks despite the decades of research but this was a big jump, imo. Stopping death from breast cancer….. I like the sound of that. I like that the words are in print with no caveats or other phrases to “qualify” the intent of the statement.

    Reply

  4. The Accidental Amazon
    Jun 27, 2012 @ 21:16:46

    I’m relieved that Fran has shifted her language. I felt a lot of disillusionment about this at the 2011 NBCC Conference. I’m glad she has gotten the message about mets. Words do matter. And stopping death certainly needs to be front and center for any breast cancer organization. I like to think that perhaps we in the blogosphere may have helped encourage this shift.

    Reply

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